Caring for a loved one after a stroke – how to help, even from afar
Coming home from hospital means a new role for the family of a stroke survivor. Someone has to keep track of medicine, appointments and rehabilitation – while letting their loved one regain independence. Often the caregiver works or lives in another town and can’t be there all day.
Independence over doing it for them
Every task the person manages on their own is training for the brain and a boost of self-confidence. The caregiver’s role is to prepare the ground – a daily plan, reminders, tidy and fixed places – rather than do everything for them. Doing it for them is quicker, but in the long run it takes away what matters most in rehabilitation.
What to agree on at the start
- fixed times for medicine, meals, rest and exercise,
- a list of appointments and dates – doctor, rehabilitation, check-ups,
- one place for documents and hospital discharge papers,
- how to get in touch when something goes wrong – who calls whom.
Caring from a distance
Calling all the time to ask “did you take your medicine?” wears both sides out. It’s better when the caregiver can simply see what has been done and what is still waiting. In PatchMyMind, the patient invites a loved one as a caregiver. The caregiver sees the day’s tasks live, can add and change them, and with the “Remind now” button can make the patient’s phone ring straight away. If a reminder goes unanswered, the caregiver gets a notification.
It isn’t control, it’s a safety net. The person acts on their own, and help appears only when it’s needed.
Know the signs of a stroke
The risk of another stroke is real, so the whole family should know the signs. Remember FAST:
- Face – one side of the face has dropped, the smile is uneven,
- Arms – weakness or numbness in an arm, usually on one side,
- Speech – slurred speech or trouble understanding words,
- Time – call 112 immediately, every minute counts.
Look after yourself too
Caring for a loved one is a marathon. Share the duties within the family, use support groups for caregivers and allow yourself to rest. A tired caregiver helps less well than a rested one. If your loved one has memory problems, also read how to cope with forgetfulness after a stroke.